Examinando por Materia "Sickness"

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    Análisis de los conceptos biomédicos, experienciales y sociales de las personas con epilepsia, integrantes de la Fundación RenaSer con Amor de Medellín
    (Universidad EAFIT, 2024) Carrizosa Moog, Jaime; Cuartas Restrepo, Juan Manuel
    Epilepsy is a public health priority according to the World Health Organization. Despite achieving 70% control of the disease through medication, affected people report a poor quality of life. The objective of the research was to investigate, through drawing and narrative, the biomedical, experiential and social experience of epilepsy. The aim was to find a method that would elucidate the concepts that affect the daily lives of the affected people. Ideas of duality, splitting, dependence, prohibition, depression were captured in the drawing, as well as a counterpart of resilience, advocacy, diversity and a new lifestyle. The narrative obtained through semi-structured surveys demonstrated how the feeling of otherness begins with the experience of the epileptic seizure, and is reinforced with the attitudes one has towards the disease, from a personal and social point of view. The metaphorical use in the different descriptions demonstrated the persistence of belief in supernatural powers as the cause of epilepsy (sin, curse, witchcraft, etc.). Other concepts found about the experience of epilepsy are those of accident, travel, dictatorship, emptiness, unreality, restriction, loneliness, stigmatization and limitations. Positions of discovery of new options to balance the disease such as sports, reading, singing or open defiance of medical recommendations were also evident. Many of these concepts negatively impact the daily lives of people with epilepsy, and even their life plan. Several of these concepts are not usually addressed in medical consultation, limiting the possibility of guidance and intervention, and perpetuating the restriction of the full development of potentialities and rights. The results reinforce that the drawing and the semi-structured interview can be useful tools in the clinical context to clarify the biomedical, experiential and social aspects of epilepsy. New research and intervention options emerge, such as validation of these strategies; the possibility of timely intervention and respective evaluation by multidisciplinary teams in the area of ​​health and human sciences, such as sociology, anthropology or social work; the extension of the research to caregivers and their immediate environment; and the recommendation to the medical team to take into account a comprehensive approach to the affected people.